Cystic Fibrosis (CF) is a genetic disease that can be fatal affecting the digestive system and the lungs. At present there is no cure. There is an estimated one in every 3,600 children born in Canada with CF and more than 4,100 Canadian children, adolescents, and adults with cystic fibrosis attend CF clinics.
CF occurs when a child inherits two defective copies of the gene responsible for cystic fibrosis- one from each parent. Approximately 1 in 25 Canadians carry a one of these defective gene copies and do not have CF or any of the related symptoms.
What Are Its Symptoms?
There are a variety of symptoms associated with CF including:
- Persistent cough with productive phlegm
- Shortness of breath and wheezing
- Frequent lung infections like pneumonia or bronchitis
- Bowel issues including intestinal obstruction, with bulky or oily stools
- Poor weight gain in children, or weight loss in adults despite a healthy appetite
- Male infertility and decreased fertility in women
- Salty tasting sweat
Each individual experiences varying degrees of CF, however, persistent and ongoing infections in the lungs and destruction of the lungs with loss of lung function eventually leads to death in the majority of people with CF.
Complications From CF
- Difficulty digesting fats and proteins
- Inability to absorb nutrients leads to vitamin deficiencies and malnutrition
- Lung damage from chronic infections and inflammation
- Diabetes related to CF
- Chronic or recurring sinus infections
Resources For Cystic Fibrosis
For patients and caregivers alike, CF is a life changing diagnosis. Reaching out for the resources you or your loved ones need is an essential part of ensuring not just physical, but also emotional and mental health.
Cystic Fibrosis Canada is an excellent resource for those looking for information about CF, as a non-profit charitable organization its mission is to raise funds for research, innovation, and care. With over $244 million dollars being raised and invested in these avenues, Canadians have the highest median survival rates in the world.
In addition to the organizations mandate, healthcare options, how to get involved, finding a chapter nearest, introduction to treatments, virtual education programs for patients and caregivers (webinars), patient resources, and more.
CysticLife.org is a social network for the CF community focused on providing positive and uplifting atmosphere. It’s a place where people with CF, their family, and friends can share tips, ask questions, express ideas, offer experiences, and encouragement. Members can maintain a profile, post blogs, ask and answers questions, create polls, contact one another directly, and search for others within their community based on location, relation to CF, age, and gender.
Cystic Fibrosis.com has over 18,000 community members in 122 countries with over 13, 000 newsletter subscribers. It’s aim to foster an online community for patients, caregivers, healthcare professionals, and industry service providers.
For patients and caregivers this resource is a great way to achieve participatory healthcare, share experiences, and look at possible solutions.
Since CF is almost always diagnosed in children, its essential parents have the access to information and community resources. TipsForCFParents.com provides resources specifically for parents with young children including: stress management, caring for your infant with CF, teaching children about CF, sibling issues, funny stories for parents with kids with CF, marriages and couples information, and more.
For those affected by CF, Share Lawyers knows how important it is to have access to information, resources, community, and an outlet for your stories and questions.
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A note from our long term disability lawyers
Taking a medical leave from work is not an easy decision to make. Concerns about providing for yourself and your family and keeping your job may cause you to want to push through your pain, but this won’t make your problems go away. Stopping work is often the smartest decision for your long term health and well-being, and your disability benefits are there to provide you with financial support until you can return to work.
If you have made the tough decision to stop working and apply for your short term disability or long term disability benefits, you may feel overwhelmed by the process and have questions that your employer and your insurance company are not able or willing to answer. Share is There to see you through and answer your questions.
Our Disability law firm knows what you have been going through
We understand that things have not been easy for you over the last little while. Your health has been suffering, you are unable to work, and now your insurance company, who was supposed to be there in your time of need, has decided they will not pay your disability benefits or respect your disability claim. These benefits exist to provide you with the financial support you need so that you can focus on your health and rebuilding your life. It is unfortunate that your insurance company has not lived up to its promise. If your disability claim has been denied, we will fight to get you the benefits you are entitled to. Our disability lawyers have helped thousands of Canadians get their long term disability benefits over the past 35 years, and we can help you too.
Our experienced disability lawyers can fight back on your behalf
Share Lawyers believes that every client who is dealing with a disability claim deserves superior personal service. To achieve that goal, we have developed our team of experienced, compassionate, and caring long term disability lawyers, law clerks, and administrative staff to meet all of your needs. Our team of experienced long term disability, life insurance, employment, and critical illness insurance lawyers have made successful claims against many insurance companies, third-party administrators and employers.
If you are unable to work, your disability benefits should be there to provide you with the financial support you need. While your insurance company may be focused on finding ways to avoid paying your claim, our focus is on what is in your best interest. When Share Lawyers gets involved, you have an entire team of lawyers that are there to support you and to fight for what is yours.
Our disability claim lawyers fight for your disability insurance claim by relying on our many years of experience to apply the best strategic planning and approach in each case, using the latest technology available. Experience matters, and with Share Lawyers, you are in the best hands with 35 years of success on your side.
In this video, we explain the role of a long term disability lawyer and how we can support you when you have been denied your long term disability benefits.